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Sofia Brizio, a 27-year-old PHD student, who has cerebral palsy, spends four hours a day on what she calls “disability admin”, including making accommodations and planning alternatives because “the world is not accessible”.
Disability Wales says disabled people endure an “immense and often daunting” amount of administration.
A Welsh government spokesperson said it was committed to supporting the rights of all disabled people and creating an inclusive society.
It’s the hidden labour of disability, says Sofia, lived in Cardiff, who is also a disability activist.
Small things, like arranging travel or booking a routine medical appointment, can take time. For her, something that might take a non-disabled person 30 seconds might take her half an hour.
Martino Brizio, a 27-year-old para swimmer from Bergamo in Italy, recently monitored how much time she spent on these tasks and calculated it was four hours a day.
Professor Debbie Foster from Cardiff University said employment relations and diversity researcher, has written extensively on negotiating workplace adjustments, said it can be very time consuming to repeatedly explain your needs and any adjustments that should be made.
Employment relations and diversity researcher, Prof Debbie Foster, of Cardiff University, said her own ill-health and difficulties in getting back to work sparked her interest in disability and employment.